Mothers' health problems of children with congenital heart disease: a qualitative method

Document Type : original articles

Authors

1 Department of Nursing, School of Nursing and Midwifery Care, Shahid Sadoughi University of Medical Sciences, Yazd, Iran

2 Department of Cardiovascular Surgery, Shahid Sadoughi University of Medical Sciences, Yazd, Iran

Abstract

Objectives: This study was done to address the physical and mental health problems experienced by mothers of children with congenital heart disease (CHD).

Methods: This study was conducted by a qualitative approach in 2021 at Yazd Afshar Hospital, in which 10 mothers were selected by purposive sampling technique. A semi-structured interview was used to collect data, and data analysis was performed through conventional content analysis. Two university lecturers determined the validity of the interview questions, and the reliability of the data was verified by a researcher trained in coding.

Results: Data analysis identified the base theme i.e., the threat to health, and subthemes including physical and psychological problems of the parent(s).  Components of subthemes consisted of physical manifestations, physical self-harm, anxiety and worry, mental self-harm, impatience and helplessness, isolation, withdrawal, and denial.

Conclusions: The results show that mothers suffer from a variety of experiences ranging from physical problems and illnesses to mental problems. An in-depth understanding of the phases of parenting under pressure provides direction for nurses to support parents of children with CHD. Interventions that help carers of children with complex health conditions move through the phases of our parenting under pressure process can help them maintain their children's survival and their survival as parents as they manage multiple needs. Therefore, the hospital should provide supportive procedures to better deal with the problem.

Keywords

References

1.Shahheidari M, Homer C. Impact of the design of neonatal intensive care units on neonates, staff, and families: a systematic literature review.J Perinat Neonatal Nurs. 2012; 26(3):260-6.
2.Simeone S, Pucciarelli G, Perrone M, et al. Comparative analysis: implementing a pre-operative educational intervention to decrease anxiety among parents of children with congenital heart disease. J Pediatr Nurs. 2017;35: 144-148.
3.Franck LS, McQuillan A, Wray J, et al. Parent stress levels during children's hospital recovery after congenital heart surgery. Pediatr Cardiol. 2010; 31(7):961-8.
4.Kaugars A, Shields C, Brosig C. Stress and quality of life among parents of children with congenital heart disease referred for psychological services. Congenit Heart Dis. 2018; 13(1):72-78.
5.Lee S, Ahn J-A. Experiences of Mothers Facing the Prognosis of Their Children with Complex Congenital Heart Disease. Int J Environ Res Public Health. 2020;17(19):7134.
6.Morse JM. How different is qualitative health research from qualitative research? Do we have a subdiscipline? Qual Health Res. 2010;20(11):1459-64.
7.Shaw RJ, Deblois T, Ikuta L, et al. Acute stress disorder among parents of infants in the neonatal intensive care nursery. Psychosomatics. 2006;47(3):206-12.
8.Meert KL, Clark J, Eggly S. Family-centered care in the pediatric intensive care unit. Pediatr Clin North Am. 2013;60(3):761-72.
9.McCusker CG, Doherty NN, Molloy B, et al. A controlled trial of early interventions to promote maternal adjustment and development in infants born with severe congenital heart disease. Child Care Health Dev. 2010;36(1):110-7.
10.Latour JM, van Goudoever JB, Hazelzet JA. Parent satisfaction in the pediatric ICU. Pediatr Clin North Am. 2008;55(3):779-90.
11.Edraki M, Kamali M, Beheshtipour N, et al. The effect of educational program on the quality of life and self-efficacy of the mothers of the infants with congenital heart disease: a randomized controlled trial. Int J Community Based Nurs Midwifery. 2014; 2(1):51-9.
12.Acharya S, Sharma K. Lived Experiences of Mothers Raising Children with Autism in Chitwan District, Nepal. Autism Res Treat. 2021;2021:6614490.
13.Wei H, Roscigno CI, Swanson KM, et al. Parents' experiences of having a child undergoing congenital heart surgery: An emotional rollercoaster from shocking to blessing. Heart Lung. 2016;45(2):154-60.
14.Harvey KA, Kovalesky A, Woods RK, et al. Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery. Heart Lung. 2013;42(6):399-406.
15.Nayeri ND, Roddehghan Z, Mahmoodi F, et al. Being a parent of a child with congenital heart disease, what does it mean?Qualitative research. BMC Psychol. 2021; 9(1):33.
16.Kasparian NA, Kan JM, Sood E, et al. Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice. Early Hum Dev. 2019; 139:104837.
17.Kolaitis GA, Meentken MG, Utens EMWJ.Mental Health Problems in Parents of Children with Congenital Heart Disease. Front Pediatr. 2017; 5:102.
18.Lawoko S, Soares JJ.Distress and hopelessness among parents of children with congenital heart disease, children with other diseases, and parents of healthy children. J Psychosom Res. 2002; 52(4):193-208.
19.Fonseca A, Nazaré B, Canavarro MC. Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of a congenital anomaly: a controlled comparison study with parents of healthy infants. Disabil Health J.2012;5(2):67–74.
20.Bevilacqua F, Palatta S, Mirante N, et al. Birth of a child with congenital heart disease: emotional reactions of mothers and fathers according to time of diagnosis. J Matern Fetal Neonatal Med. 2013;26(12):1249-1253.
21.Vainberg L.D, Vardi A, Jacoby R. The Experiences of Parents of Children Undergoing Surgery for Congenital Heart Defects: A Holistic Model of Care. Front Psychol. 2019; 10:2666.
Cardiovascular Biomedicine
Volume 3, Issue 1
August 2023
Pages 42-50

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History

  • Receive Date: 14 April 2023
  • Revise Date: 07 August 2023
  • Accept Date: 19 August 2023
  • First Publish Date: 22 August 2023

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